20 Years Old Living with Russell-Silver Syndrome
My 10 year-old Imagining His Life in 10 Years….
A GUEST STORY
I was in my mom’s womb trying to grow when the doctors saw that I was having trouble. “Failure to thrive” was written on my chart and there was concern. Ultimately, I was born a month and a half early at 2 pounds, 6 ounces, but my father was long gone by then. He didn’t want to have anything to do with a deformed kid.
The reason for concern was Russell-Silver Syndrome, a disorder that involves, among other things, low growth, low birth weight and short height. In other words, I’m small.
My bones are thin, my voice is weak and my eyes are unusual. I’m the size of a fourth grader. But here’s the thing—at 20 years old, I’m 4’10”, 65 pounds and as big as…
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