World Rare Disease Day

It’s not just about rare disease….. it’s about hope.  Hope for those who are diagnosed with a rare disease that they will either find an appropriate treatment plan, or a drug to help sustain their lives.  Hope for those not yet diagnosed who continue to meander sometimes aimlessly among the medical system – searching for never ending answers.  Hope for those who have lived with a rare disease see their valiant efforts to help others find a cure or limit the impact of their disease within their family network.  And Hope that eventually, the words “rare disease ” will be understood as not something to be afraid of – yet, inherently commonplace in the medical field as a target for well deserved management and in some ways – hopeful irradication of many rare disease.

The Global Genes Project and their Hope…It’s In Our Genes campaign in February 2010 – was the beginning of a core message around the globe about rare disease and the need for greater awareness to develop better treatment options as well as instill and encourage legislative initiatives toward driving capital for these treatments. 

This year, 2011 – the Global Genes Project have issued a press release on their 2011 World Rare Disease Day efforts – focusing on wearing Denim………

It’s the Global Genes …..”Wear That You Care™” Denim Campaign in support of Rare Disease Day 2011 and to call attention to the global drug development crisis facing millions of people afflicted with rare diseases.  The “Wear That You Care™” Denim campaign is simple — all across the world people can participate in supporting the rare disease movement on Rare Disease Day 2011 by wearing a Denim Jeans Ribbon™ and their favorite pair of jeans — also known as vaqueros, cowboybuksers, niuzaiku, farmernadrag and dungarees in other countries.”….. Please see the following link for further information….

http://www.prnewswire.com/news-releases/global-genes-project-announces-wear-that-you-care-denim-awareness-campaign-for-rare-disease-day-2011-114631964.html

World Rare Disease Day – February 28, 2011   

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