Hello ,I found your blog through the ABC news story.From what that article says you are in Illinois. I am looking for a Doctor in northern Ill who is familiar with RSS . After many Dr.’s having no clue whats going on with my super small FTT baby I did research and truly believe that she has RSS.I brought it up with her doctor and she had no idea what I was talking about ,although she does agree that my daughter may be a little person.We where referred to see a geneticist, however I would like one familiar with RSS. Any help in the right direction would be greatly appreciated . Thank you nfor your time .
Hi Susan. It is a pleasure to meet you. I would like to respond to you privately through email, as I do have information that should be beneficial. I am so glad you found me and look forward to communicating more with you. I commend you for your determination. Hugs.
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