7000 Bracelets For Hope

I’m excited about a recent campaign brewing for children with Rare Disease!  It’s called 7000 Bracelets for Hope….sponsored by the Global Genes Project. 

As you all know – I am an avid advocate and supporter of children with rare disease – and have been faithful to Russell-Silver Syndrome families as well as to The Children’s Rare Disease Network and The Global Genes Project. 

The more awareness we can bring to the table, the more likely an opportunity for better treatment options and support to those in need.

Please see information below I have copied from The Global Genes Project – it’s a great campaign and I hope you will take a moment to consider being involved in such an awesome opportunity to create greater awareness for rare disease!

A CAMPAIGN CELEBRATING RARE KIDS

 

There are approximately 7,000 rare diseases and disorders (defined as those affecting fewer than 200,000 people). Experts estimate more than 20 million kids in the U.S. alone live with rare diseases, disorders and conditions – and the number grows exponentially greater worldwide. Most have no effective medical treatment and many have no foundation or group to turn to for support.

This fall we’re doing something fun to create greater awareness for this community – and we need your help. The Global Genes Project volunteer team is collecting blue jean- and denim-inspired bracelets to give to families living with rare diseases, disorders or conditions. It’s part of a campaign called 7,000 Bracelets for Hope. To help raise awareness we’re asking 7,000 jewelry designers – volunteers from the craft community and various artists – to donate one bracelet each to show support for rare kids. This campaign will continue until World Rare Disease Day on February 28, 2011. Each bracelet will then be donated to one of 7,000 rare families (parents and caregivers of rare kids).

“How compelling to connect 7,000 new champions to our community’s kids and their families,” stated Catherine Calhoun, program director for “7,000 Bracelets for Hope” campaign.

    

Parents with children who have a rare disease, disorder or condition can sign up to participate at  www.globalgenesproject.org

 

. In February, each will receive a very special blue jean- and denim-inspired bracelet from one of our contributors to wear with pride.    

In addition, designers and crafters can sign up to submit a bracelet at our website. In addition to getting complete details about submitting bracelets, you’ll also find additional opportunities to promote designer products within the Global Genes community. Anyone can make a bracelet. Our goal is simple: Make it easy to show support for these children and their families.

 

We need everyone’s help to make this campaign a success. Please join us at 

 www.globalgenesproject.org  

 

Ask jewelry designers, artists, crafters, scouting groups, school groups and church groups to donate a bracelet.

 

  

Pass along details of the campaign to families who have a child with a rare disease, disorder or condition.

 

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